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Huntington's Disease

Health > Conditions and Diseases > Neurological Disorders > Huntington's Disease

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Support Groups (1)

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Australian Huntington Disease Association (Vic) - http://www.ahda.com.au
Information about Huntington Disease and HD support services available in Victoria.

Australian Huntington's Disease Association (Qld) Inc. - http://www.qahda.com/
Gives disease information, services available in Queensland Australia and links.

Australian Huntington's Disease Association Inc. - http://www.ahdansw.asn.au/
Offers support for families living in the Australian states of New South Wales and the Australian Capital Territory. Includes resources and information about NSW.

Caring for People with Huntington's Disease - http://www.kumc.edu/hospital/huntingtons/
Information about caring for people with Huntington's disease, for patients, families and professionals.

CureHD Foundation - http://www.curehd.org
A charity site aiming to spread awareness, information, and news about Huntington's disease.

eMedicine Health - Huntington Disease Dementia - http://www.emedicinehealth.com/articles/39041-1.asp
Consumer health resource center providing information on the causes, symptoms, and treatment.

Heather's Huntington's Disease Page - http://heatherdugdale.angelfire.com/
Features a weblog, care giving tips, ways to fight brain fog, myths, the author's story, families’ story, poetry, and ways to have a positive testing experience.

Huntington Disease Clinical Research - http://www.cmmt.ubc.ca/research/clinical/HD_Clinical_Research/
The clinic provides care from several perspectives for individual(s) with HD as well as their families.

Huntington Disease Medical Clinic - http://www.cmmt.ubc.ca/clinical/
The clinic provides care from several perspectives for individuals with Huntington Disease (HD) as well as their families. Based at the University of British Columbia, Vancouver, Canada.

Huntington Study Group - http://www.huntington-study-group.org
Coordinates and provides enrollment for drug trials across United States, Canada, Europe and Australia.

Huntington's Disease - http://www.ninds.nih.gov/disorders/huntington/huntington.htm
An information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. Includes links to NIH recruitment for drug trials and detailed information about HD.

Huntington's Disease Advocacy Center - http://www.hdac.org
Information, questions and answers, problem-sharing, personal experiences and articles on Huntington's disease.

Huntington's Disease Association UK - http://www.hda.org.uk
Supports people affected by the disease and provides information and advice to professionals.

Huntington's Disease Blog - http://www.huntingtons.info
Weblog with the latest information on research and news.

Huntington's Disease For Families - http://huntingtondisease.tripod.com/
Information for all families living with this disease including people with HD, caregivers, those at risk and young people.

Huntington's Disease Information - http://www.lib.uchicago.edu/~rd13/hd
A resource on Huntington's disease.

Huntington's Disease Overview - http://neurologicalillness.suite101.com/article.cfm/huntingtons_disease_overview
Provides articles, blogs, and discussions on HD. Topics include communication, safe housing, and behavioral issues.

Huntington's Disease Program UCHC - http://psychiatry.uchc.edu/huntingtons/
Services of the Huntington's disease program of the University of Connecticut Health Center.

Huntington's Disease Society of America - http://www.hdsa.org
Research, assistance, and education.

International Huntington Association - http://www.huntington-assoc.com/
Federation of national voluntary health agencies.

Juvenile HD - http://endoflifecare.tripod.com/juvenilehuntingtonsdisease/
Information for families with a child with juvenile HD or one at-risk. Includes at-risk, genetic testing/testing of children, related JHD and HD symptoms and how to recognize/help, types of therapies, various medication and drug searches, surgeries, procedures used in testing, suicide, divorce, disabilities, assistive technology, support links, and benefits/insurance.

Nutrition for People with Huntington's Disease - http://www.lib.uchicago.edu/~rd13/hd/nutritn.html
Nutritional information, and resource links on aspects of nutritional care for people with Huntington's disease.

The Huntington's Disease Lighthouse - http://hdlighthouse.org/
Current information on treatments, drugs, support and patient resources.

Tony's Family Site - http://www.bridger.freeuk.com
A personal website detailing how Huntington's disease has affected Tony's family and friends.

UCHC Huntington's Disease Program - http://www10.uchc.edu/huntingtons
Services of the Huntington's disease program of the University of Connecticut Health Center.

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