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Friedreich's Ataxia Research Alliance - http://www.faresearchalliance.org/
Non-profit organization dedicated to the pursuit of scientific research leading to treatments and a cure. |
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Friedreich's Ataxia Fact Sheet - http://www.ninds.nih.gov/disorders/friedreichs_ataxia/detail_friedreichs_ataxia.htm
A resources guide and fact sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. |
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Friedreich's Ataxia Parents Group - http://www.fortnet.org/fapg/
With advice for new parents on the disease, and on how the parent might better cope emotionally. |
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Swiss Association of Friedreich Ataxia - http://www.achaf.org/
Parents and friends of patients campaigning for better treatment for ataxics in Switzerland; also sharing news and information about the condition and current research. |
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Friedreichs Ataxia Society Ireland - http://www.ataxia.ie/
Voluntary organisation providing support to anyone affected by genetic ataxias. Includes events calendar, membership details, and information on accessibility issues. |
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GeneClinics: Friedreich Ataxia - http://www.geneclinics.org/profiles/friedreich/
An in depth look at this disorder. Includes a summary, diagnosing, molecular genetic testing, clinical description and management. |
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Friedreich Ataxia Research Association - http://www.fara.org.au/
Summarises recent progress in ataxia research and the search for better treatment. |
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Matt's Mansion - http://www.matthewlaw.co.uk/
Describes his life with the condition, and his travels in a wheelchair. Includes information for any disabled person considering foreign travel. |
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Not Going Quietly - http://www.notgoingquietly.com
A personal account of diagnosis, daily life, challenges, and international travel. Includes details of treatments, and a photograph gallery. |
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CajunHeart - http://cajunheart.tripod.com
Kim Bourg describes her life with the condition, and suggests strategies for coping with it in oneself or others. Includes details of symptoms and diagnosis. |