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Muscular Dystrophies

Health > Conditions and Diseases > Neurological Disorders > Muscle Diseases > Muscular Dystrophies

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Organizations (15) Personal Pages (17) Support Groups (14) United Kingdom (3)

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	NINDS Muscular Dystrophy Information Page - http://www.ninds.nih.gov/disorders/md/md.htm Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
	National Registry of Myotonic Dystrophy and FSHD Patients and Family Members - http://www.urmc.rochester.edu/nihregistry/ Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
	FSH-MD Support Group - http://www.fsh-group.org/index2.html Provides support for those with Facio Scapulo Humeral and their carers.
	Duchenne/Becker Muscular Dystrophy - http://www.ygyh.org/dmd/ Includes key facts and animated slide shows of causes, diagnosis and treatment.
	Becker Muscular Dystrophy Information Exchange - http://www.beckermusculardystrophy.org Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.

	Living For Today, Preparing For Tomorrow - http://www.livingfortoday.org Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
	DMD Pioneers - http://www.dmdpioneers.org/ Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.
	General Practice Notebook - Duchenne muscular dystrophy - http://www.gpnotebook.co.uk/simplepage.cfm?ID=-885719035 Clinically-oriented information.
	DMD Information - http://www.angelfire.com/band/teja/index_dmd.html Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
	Muscular Dystrophy Campaign - http://www.see-search.com/musculardystrophycampaign.htm Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.

	Muscular Dystrophy - http://www.musculardystrophy.gr/ Details about Nectar "T", not a cure for MD, but aims to delay its progress, gaining valuable time until the medical community will solve the problem permanently. Multilingual site.
	MDA Ride For Life - http://www.mdarideforlife.org/ Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.
	Prevention of Pulmonary Morbidity for Patients With Duchenne Muscular Dystrophy - http://www.chestjournal.org/cgi/reprint/112/4/1024.pdf Study evaluating the effects of a new respiratory management protocol on respiratory morbidity and hospitalization rates for patients with Duchenne muscular dystrophy. From the American College of Chest Physicians.
	A Guide for Parents - http://www.mda.org.au/Information/Publications/Guide/mdaguide.asp This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.

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