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Prader-Willi Syndrome Association (USA) - http://www.pwsausa.org/
Characteristics include hypotonia, insatiable appetite, obesity if food intake is uncontrolled, hypogonadism and incomplete sexual development, developmental delays, variable degrees of mental retardation or functional retardation, short stature (adult), small hands and feet, mild dysmorphology, and behavior problems which can be severe. |
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Prader-Willi Alliance of New York - http://www.prader-willi.org
Represents the interests of individuals in New York State with Prader-Willi syndrome, their families, and the professionals who provide services to the Prader-Willi population. |
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Latham Centers - http://www.lathamcenters.org
A non-profit, residential treatment center for the treatment of adults and children with Prader-Willi Syndrome. Find program details, a photo gallery, and contact information. Located on Cape Cod in Brewster, Massachusetts. |
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PWS Notes - http://www.pwsnotes.org/
Designed to provide useful background on Prader-Willi Syndrome (PWS) for parents and to organize medical information that may be helpful for future research directions. |
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The New Jersey Chapter of the Prader-Willi Syndrome Association - http://www.pwsausa.org/nj/
Includes news, important dates, fund raising, maps and links. |