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Children and Heart Disease - http://www.americanheart.org/children/
The normal heart, defects, heart murmurs, kawasaki disease, treatment, school programs and feeding an infant with congenital heart disease. Information provided by the American Heart Association. |
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Experience Journal - Pediatric Heart Disease - http://experiencejournal.com/
Features stories and personal experiences from families about what it's like to live with their children's heart disease. |
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Pediheart - http://www.pediheart.org/parents/
Explains the normal heart and how it is affected by disease in children. |
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Little Hearts - http://www.littlehearts.net/
Provides support and information to families of children with congenital heart disease. Offers useful links, parent matching, email groups and activities. |
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Rush Children's Heart Center - http://www.rchc.rush.edu/
Provides tutorials about cardiac disorders, diagnostic tests and the normal heart for health professionals, parents and children. Includes illustrations, animations and movie clips to aid learning. |
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Author Susan May - http://www.susancmay.com
Mother of a son who was born with congenital heart disease and received a heart transplant before he turned two has written a book about the experience. Find articles, a reading list and information about transplantation. |
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Heart Encyclopedia - http://www.cincinnatichildrens.org/heartcenter/encyclopedia/
Children's Hospital Medical Center of Cincinnati has compiled information about disorders that may affect a child's heart and options to treat those conditions. |
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Children's Heart Project of Sri Lanka - http://www.chplanka.org
Helping save children with heart disease in Sri Lanka, specially CHD patients. Learn about congenital heart defects and how to donate to the cause. |
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Hypoplastic Left Heart Syndrome - http://www.angelfire.com/ia2/mollyjoan/index.html
Parent's personal account of her child's illness and surgery. Includes links, diagrams and information about the condition and the Norwood surgery. |
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Carson's Heart Page - http://members.tripod.com/carsonsheart/
Dedicated to a child who had surgery for congenital disease. |